#In this episode, Jen speaks with Don about his family's journey navigating the complexities of PANDAS, a pediatric autoimmune disorder. They discuss the challenges of obtaining a correct diagnosis, the importance of advocacy, and the role of education in recognizing symptoms. Don shares his experiences with the medical community, the emotional toll on families, and the significance of community support. He also highlights the importance of writing his book to help other families facing similar struggles and the need for greater awareness of PANDAS in schools and medical practices.
Key Takeaways:
-Advocacy for children's health is crucial, especially in misunderstood conditions.
-Navigating the medical system can be a daunting task for parents.
-Education about rare disorders like PANDAS is essential for early recognition.
-Collaboration between parents, teachers, and medical professionals is key.
-There is hope and recovery possible for children diagnosed with PANDAS.
Episode Highlights:
[02:37] The Onset of Scotty's Symptoms
[06:21] Navigating the Medical Maze
[10:37] The Role of Advocacy in Healthcare
[12:32] Understanding PANDAS and Its Symptoms
[21:15] The Decision to Write the Book
[24:46] Finding Hope and Community Support
Resources Mentioned:
Navigating PANDAS - A Family’s Journey to Healing and Advocacy: https://a.co/d/gDKrIqM
Navigating PANDAS Website: www.navigatingpandas.com
PANDAS Parents Support: https://www.facebook.com/groups/pandasparents/
Neuroimmune Foundation: https://neuroimmune.org
PANDAS Network: https://pandasnetwork.org/resources/parent-resources/
Connect with Don:
https://www.instagram.com/donnelly_don?igsh=ZTFhd3NuYWlqdnF5
https://www.facebook.com/share/b6tQ99T1mbvCtzTv/?mibextid=LQQJ4d
https://www.linkedin.com/in/don-donnelly-34712610
#PANDAS #pediatricdisorders #medicaladvocacy #parenting #mentalhealth #autoimmunediseases #medicaljourney #support groups
