Navigating PANDAS - A Family’s Journey to Healing and Advocacy
Don Donnelly is a dedicated husband, father, and advocate, residing with his wife of two decades and their two sons. With a career deeply rooted in the medical device industry, particularly in innovations designed to alleviate chronic pain, Don's professional life has been marked by a commitment to improving the well-being of others. However, his personal journey as a father has truly defined his latest venture into writing.
His debut book emerges from a heart-wrenching experience with his youngest son, Scotty, who was diagnosed with Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) at the age of 9. The family's odyssey through the complexities of the medical system, consulting with 13 specialists before arriving at a correct diagnosis, revealed the profound challenges and obstacles faced by families grappling with misunderstood diseases.
Motivated to shed light on PANDAS and advocate for better recognition and treatment within the medical community, Don penned this book to share their story, offer solace, and guide families encountering similar trials. His narrative is a call to awareness and a powerful reminder of the importance of perseverance and advocacy in the face of adversity.
At the heart of Don's philosophy is a firm belief in fighting for the well-being of loved ones, even when faced with skepticism or misunderstanding from professionals. "Doctors can be wrong," he asserts, encouraging others to trust their instincts and advocate for the correct care and diagnosis.
Through his writing, Don Donnelly aims to connect with readers in the shadows of uncertainty and fear, offering hope, understanding, and a path forward. His story is a testament to the strength of family, love, and the relentless pursuit of answers.